Sunday 30 August 2009

Holidays and scans







Well we are back from our family holiday in UK. We had a great time and some wonderful weather. Darren was well and loved spending time with the girls. We have an appointment for Darrens scan on the 8th Sept and still waiting for follow up appointment which i will call Macmillian nurse about on Tuesday.

Hope everyone is well

Wednesday 19 August 2009

Damn it

Well results werent so good. They have manage to lose the % results so now have to wait till they find them.
Darrens liver results are now a concern. He has to go and have extra blood tests, and an ultrasound scan, within the next few weeks. He also has an appointment for bone marrow removal in a few weeks :( OUCH
Wishing it was better news.

Tuesday 18 August 2009

Results day tomorrow and new life

Well another appointment is nearly here and the wait is terrible.
The way CML works is you have to have a 3 log reduction in first 6 months. So % of cancer is calculated every few months. First % was guessed at 97% as the hospital lost them :(
Hoping for a good reduction tomorrow and then further reductions at 6/7 months so we can know we are on the right track.
Also hoping liver/kidney and platlets results are ok, as there always seems to be a BUT at every report.

The girls have picked up today, so looking good there.
Darren has been turned down for DLA even though some days his too tired to get out of bed and is often going back to bed during the day, so money is still tight, but if we can deal with cancer we can deal with everything.

Our best friends have had a beutiful baby boy this week and he is so sweet and a great reminder of how life goes on and how precious it truely is.

Oh Im putting together a photo montage with photos of our family but also would love pics of other CML suffers to include.

If you want to send me a pic to include, please email me minx101@hotmail.com with a name, who the picture is of, age, date of dx and anything else.

thanks for listening and hoping to update with some lovely news tomorrow. x

Sunday 16 August 2009

Holidays and Swine Flu







I have been away to the beutiful Isle of wight with my lovely girls. We had a great time and spent most of it on the beach building sand castles and chasing waves. We also visited a small Zoo.

However, Jasmine has now developed signs of swine flu, with a massive temperture, diahorra, aches and not eating. Tanisha has complained of Headaches and dizzy spells. Both girls are at home with me and we are hoping they pick up before our family holiday on Saturday.

Darren gets % results on wednesday and we will have an idea of how well the cancer fight is going, so prayers and thoughts please.

Thursday 6 August 2009

4 months in, what a difference a few months makes.

Well here we are, 4 months into Cancer treatment and awaiting another load of results. On the 19th we will find out what % the cancer is at now. We are all hoping the daily chemo is working and that results are good one. Its odd, sometimes I can go a few days, sometimes a week and not think too much about the fact my lovely husband has cancer, but then there is always something to remind you. It could be the huge meds box on the side, Darrens drug alarm that goes off at 8am every morning, or even just the call i got last night from Darren wondering what to do for the best after visiting a friend with a sick child. Cancer has a way of sometimes just taking your breath away, of sometimes just sneaking in and reminding you that life is cruel, so breakable and oh so sad at times.
I look at my girls and I know they dont understand, I know most of our friends see Darren and dont understand. He looks so well and hides his tiredness so well, but sometimes I wish he wouldnt, sometimes I would like someone to see Im sinking on a bad day.
I guess I would just like life back. Before we worried about drugs, sickness, hospital appointments and what our next option is if this doesnt work. I know once the 19th is over, we wil be good again for a while, until the following month when its time for Darrens bone marrow biopsy.

Oh well, I guess life goes on, and i really should get back to my wonderful life of housework.

Hugs and prayers to all those that need it.

Monday 3 August 2009







Well we went camping, and loved it. Was wet for one night but rest was ok. Hope your all well.

Darren has been tired again, but his appointment is on 19th so fingers crossed we get good results.