Still here and still waiting :(

Well Im so sorry to have neglected my blog, the one thing that has kept me sane! Darren had another Apppointment 3 weeks ago. His specialist decided to scare the hell out of us and talk to us about Bone Marrow Transplants (BMT). Darren still hasnt met remission and there is a magic time limit btween 12-18 months from dx to remission before they have to consider other treatments. So here we are 15 months in and still not there.
Scarcy thing about BMT is we have always thought we would be ok, Darren has a half brother and 2 beutiful girls if needed right?! WRONG. Unless Darren has a full sibling the match from half sibling and children is just as risky as if using a stranger donation. So after this wonderfully insightful discussion with specialist (who didnt have full test results back at time) we left with another round of chemo drugs, a 3 monthly appointment and strict instruction to return if darren went downhill.

So fast forward to Monday and Macmillian nurse Alison calls, she tells me there is a problem with darrens last blood tests and so he has to go and have more bloods on Friday :(

So now we wait again! Somedays its pretty easy to forget Darren has cancer and that we will now spend the rest of his/our life with it. I think its only hit me the last few weeks how thats going to be. we are never going to be free from, it will always be there. Even with cure with BMT, it still daily rejection drugs to take rather than Chemo, either way life isnt going the path we thought it would. But hey, we will hang on in there, theres way to much life to spend it battling the thorns in the way!

Love hugs and prayers to those that need them and prayers to my wonderful friends who have lost their battle :(