Friday, 17 December 2010

Well another month goes passed with nothing to report for Darren. His doing well, and the new drugs are amazing and with very few side effects.
The girls are doing ok. Tanisha has struggled to cope with the changes that come with xmas at school and we have been told Jaz has hyper mobile joints and now have to do nightly excersises to stop her leg muscles getting too tight, as she walks on tiptoes.
I think I might have to start a blog about our wonderful girls who are affected by Autisim, but not sure I have the time :)

Tuesday, 23 November 2010

Mutation results are in :)

Got a letter the other day but just got chance to post.
Wonderful news is Darren does not carry the mutations which would effect his treatment.
There is no reason to think the new chemo shouldnt work :)
woo hoo

Monday, 15 November 2010

Well what can I say..

not a lot really, things with Darren are fairly settled here. The new drugs are great and Darren is no longer tired or feeling sick! His starting working out again which is great apart from at this rate he will need new clothes again soon.
We are having a few other difficulties. Our beutiful girls, who are the light of our lifes but of course come with worries. Tanisha is doing well in her new junior school but Jaz is currently also going though the assessment for Autisim too. Its a hard time some days but when i think on what we have been though as a family in the last 20 months, I just know we will be fine :)
Hope your all well and not too cold!!

Wednesday, 20 October 2010

Good news, phew I can breath again!!

We went to Hammersmith yesterday, we decided to chance driving and it wasnt too bad. Darrens new specialist is Spainish and looks like aresearcher should, big glasses, very tall and slightly on the nerdy side but his the best so who cares :)
Darrens results are nearly all back. His cancer levels in his blood have dropped quicker than we could ever have hoped for. And now is cancer cells stand at 0.664% which is great as it means its the lowest its ever been since this all started 19 months ago.
We are still waiting for mutation results (checking if Darren is still human)but they should back intime for his next appointment on the 3rd November.

Overall a great results and the new chemo is clearly doing its job.

Monday, 11 October 2010

Change of plans

Darren now has to see the Big man of CML himself as he has requested to see Darren after recieving his notes. We now have to wait another week to see him but hopefully its a good news as if he now has the best man for the job :)

Sunday, 10 October 2010

Well heres hoping our week brings good news.
Here is a blog from naother CML sufferer who is further along treatment than Darren and having to undergo a bone marrow transplant. Please have a read and follow her story

Thursday, 7 October 2010

Hammersmith here we come!! Darrens doc made urgent referal today they will call today or tomorrow with an appointment for next week!