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darren 10/15/09

life is pretty good here

Not much going on really. Have been spending what little nice weather we have out as a family, and enjoying walking and bike riding. Scan results came in this week and all clear, which is great. Still awaiting bone marrow results, but have told us they will let us know once results are in.

here are some pics of our lovely days out together, and will update with any news.

wonderful results

Darrens cancer cells are down to just 4%!! they started at about 99% (not 100% sure as they lost results, but they are goin on how unwell he was when dx), then 39% and now just 4!! Needs to be 0.001 to be in remission but this is still fab news. My darren was so brave having bone marrow taken today, the needle is hugggee.
onwards and upwards.

did she jump or was she pushed!?

I am struggling to hold it together this week. Darren has scan tomorrow night and then bone marrow biopsy and consultant meeting on thursday. Tanisha is back at school and im back to work. Jaz starts new childcare this week in the form of my sister, she has her 2 year check next wek and starts preschool on the 17th. In all honesty, as much as i hate to say this as too prud, we are broke :( I did a carboot this week to just be able to afford food shopping and i dont know what to do until payday on the 26th. Im doing another carboot on saturday and hopo06.efully that will see us though and also selling stuff on ebay. I just cant seem to get ourself out of this hole. And before you ask, the holidays were paid for ages ago and we had food money and that was pretty much it and the reason we spent a lot of time on beach (thank goodness it was nice and sunny). Benifits are being very slow in decided what they will give us/ if anything at all.

I just know how i will get though this week, im tearful and stressed and trying so hard to be normal. So many people tell me how brave and how well i handle this, and while i know they are trying to be nice, it does make me feel as if it would be a bad thing to fall apart :( that it would be failure on my part.

wish us luck and please think about us in prayers this week, im thinking this week it might be needed.

Holidays and scans

Well we are back from our family holiday in UK. We had a great time and some wonderful weather. Darren was well and loved spending time with the girls. We have an appointment for Darrens scan on the 8th Sept and still waiting for follow up appointment which i will call Macmillian nurse about on Tuesday.

Hope everyone is well

Damn it

Well results werent so good. They have manage to lose the % results so now have to wait till they find them.
Darrens liver results are now a concern. He has to go and have extra blood tests, and an ultrasound scan, within the next few weeks. He also has an appointment for bone marrow removal in a few weeks :( OUCH
Wishing it was better news.

Results day tomorrow and new life

Well another appointment is nearly here and the wait is terrible.
The way CML works is you have to have a 3 log reduction in first 6 months. So % of cancer is calculated every few months. First % was guessed at 97% as the hospital lost them :(
Hoping for a good reduction tomorrow and then further reductions at 6/7 months so we can know we are on the right track.
Also hoping liver/kidney and platlets results are ok, as there always seems to be a BUT at every report.

The girls have picked up today, so looking good there.
Darren has been turned down for DLA even though some days his too tired to get out of bed and is often going back to bed during the day, so money is still tight, but if we can deal with cancer we can deal with everything.

Our best friends have had a beutiful baby boy this week and he is so sweet and a great reminder of how life goes on and how precious it truely is.

Oh Im putting together a photo montage with photos of our family but also would love pics of other CML suffers to include.

If you want to send me a pic to include, please email me minx101@hotmail.com with a name, who the picture is of, age, date of dx and anything else.

thanks for listening and hoping to update with some lovely news tomorrow. x