Can it get worse? yes it can

Darren had a car crash yesterday, this is whats left of his little car :(

Well more results are in and its not good :(

Darren has developed a resistance to the chemo, even at double dose. The bone marrow shows a rise to 25% of cells having cancer but not in the way that makes in blast crisis (very complex). The cancer is rising and he has splited out of the 2nd part of remission and it not great.
He now starts new treatment tomorrow but has had loads of bloods taken for gene testing. If he developed a resistance to this chemo he could be resistant to all of them and then its straight to Bone marrow transplant.
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bad news keeps coming! :(

Blast cells from bone marrow hadnt changed at all still at 4% on last tests. They have told us if it goes to5% he will be in crisis phase which is classed as AML which is scarcy as that is full blown, iv chemo and stays in hospital stuff :(
please keep us in your thoughts.
Im sure we will get though this, we always do and are just treating this as a bump in the road.

Bad news at appointment :(

Darrens chemo isnt working, and the results show his cancer cell count is back to what it was Aug last year :(
He now has double chemo, a bone marrow biopsy next week and a referal for Hammersmith which has the best specialist in Europe.
Its very hard to hear that the last year has been for nothing and we are pretty much back to the begining. The chemo is making Darren feel sick and his tired :(
Will update with more news when we have some, hopefully next time with better news.

Bad news

Darrens results are in. The amount of cancer in the blood isnt goign down quick enough, and so now we have to go back in a few weeks and discuss other options :( to say we are scarced is an understatement.

Still here and still waiting :(

Well Im so sorry to have neglected my blog, the one thing that has kept me sane! Darren had another Apppointment 3 weeks ago. His specialist decided to scare the hell out of us and talk to us about Bone Marrow Transplants (BMT). Darren still hasnt met remission and there is a magic time limit btween 12-18 months from dx to remission before they have to consider other treatments. So here we are 15 months in and still not there.
Scarcy thing about BMT is we have always thought we would be ok, Darren has a half brother and 2 beutiful girls if needed right?! WRONG. Unless Darren has a full sibling the match from half sibling and children is just as risky as if using a stranger donation. So after this wonderfully insightful discussion with specialist (who didnt have full test results back at time) we left with another round of chemo drugs, a 3 monthly appointment and strict instruction to return if darren went downhill.

So fast forward to Monday and Macmillian nurse Alison calls, she tells me there is a problem with darrens last blood tests and so he has to go and have more bloods on Friday :(

So now we wait again! Somedays its pretty easy to forget Darren has cancer and that we will now spend the rest of his/our life with it. I think its only hit me the last few weeks how thats going to be. we are never going to be free from, it will always be there. Even with cure with BMT, it still daily rejection drugs to take rather than Chemo, either way life isnt going the path we thought it would. But hey, we will hang on in there, theres way to much life to spend it battling the thorns in the way!

Love hugs and prayers to those that need them and prayers to my wonderful friends who have lost their battle :(

Well if its not one fight its another!

Darren had his 3 monthly appointment and all is pretty good, he has met 2nd stage remission so only one stage left before full remission. His bloods as always were a little "off" but nothing major and just keeping an eye.

Our eldest Tanisha was given a full diagnosis of Autism this month, so alot of our engry is going into getting her the support she needs. But hey we have the fighting spirt so might as well make use of it.

Not a huge amount to write about im afraid, but it feels great :)

Hope your all well

I will be tapping your wallets for money for Race for Life soon so please give :)